We Are Ready For a Cure
Cadman has his unique way of saying I love you. He can’t say the words verbally yet, but when his face lights up when he sees us after school or when he leans in for “rubsie nosie,” Cadman makes his love clear – we just have to listen with more than just our ears.
Cadman is spunky, a bit mischievous, at times unaware of danger, and always on the go, and because of that we are constantly vigilant – always aware of the possibility of him getting hurt, wandering off, or unintentionally damaging things. He also keeps us laughing and reminds us to appreciate the simple joy of seeing an airplane in the sky, watching waves crash, and all the silly things in life that Cadman makes sure do not go unnoticed. Our biggest wish is for a future where Cadman will have more independence, safety, and opportunities to experience life as abundantly as anyone else.
A cure or treatment for CTD would mean so much for our family. We hope it could help Cadman communicate his thoughts and needs more clearly, eliminate his seizures, and allow him to participate in social and recreational activities with his peers without sensory and behavioral challenges standing in the way.
Being part of the ACD community has given us hope and direction. It has truly empowered us to take real action toward finding a cure for Cadman!
Follow these links to learn more about CTD and the Association for Creatine Deficiencies.
We are fighting for Cadman's future. You can help us fight by donating today
The Association for Creatine Deficiencies (ACD) is a non-profit organization dedicated to finding a cure for CTD. For over a decade, they have worked with top-tier institutions such as UCLA, Stanford, and Boston Children’s with dedicated researchers who are driving progress.
Now, with clinical trials closer than ever, ACD needs one thing to move forward—funding. We have joined their Race for a Cure in an effort to help reach their $8 million fundraising goal.
Join us in the fight to cure creatine deficiencies.
For hundreds of children around the world living with a cerebral creatine deficiency, every day is unpredictable.
These rare genetic disorders disrupt the brain’s ability to process or transport creatine, a vital molecule for energy, especially in the brain and muscles. As a result, children may face developmental delays, speech and motor challenges, seizures, behavioral differences, and frequent medical interventions.
There is hope on the horizon!
In some forms of the condition, early intervention with supplementation has led to dramatically better outcomes. Though CTD remains without a proven cure today, early studies and emerging research are illuminating a path forward. Your support can accelerate that journey.
